Showing posts with label cholesteatoma. Show all posts
Showing posts with label cholesteatoma. Show all posts

Sunday, November 9, 2008

We're back!

Well, we're back! We drove home to Salt Lake on Wednesday so Jonathan could go to his follow-up appointment for his ear - which seems to be doing A-OK, he just needs to have a hearing test in about a month, and then keep an eye on it and get it checked again in a year - and then on Saturday we drove back up to Adrian. So here we are! We're staying with my in-laws while Jonathan is searching for a job, and we are optimistic and hoping he'll find one super soon. Until then, we are having lots of fun with his family and enjoying spending a little extra time together.

Sunday, October 26, 2008

Cousins & Family Fun

This morning we spent some time with Jonathan's family at Daniel and Bethany's house in Kaysville. We had breakfast and just visited, and it was great to spend some time with them! James and his cousin Joshua are around the same size and they are both getting more mobile and talkative, so it was fun to see them interact with each other. These boys are sure to be great buds as they get older!

Here is our buddy in the car all ready to go this morning.


James was still pretty sleepy when we got there, and it took him a little while to wake up and warm up to everybody. His cousins Joshua and Hannah were very excited to see him and were full of hugs, as you can see!



Uncle Joseph is a favorite, and James hung out with him for awhile and had a nice cuddle while he was waking up. I just love the second picture! I am so grateful that our boy has so many wonderful aunts and uncles who love him. He is such a lucky boy.



Playing with cousin Hannah and some toys. Apparently Hannah has been excited to see James for the past few days and kept asking her mom when she'd get to see "Baby James."


Emma Jeane is so cute with the little kids!


Jonathan's cousin Kim and her husband Ryan were also there. We have been able to get to know them a little during the past few months or so, and they are so much fun! One very interesting thing is that Kim recently had the exact same ear problem (cholesteatoma) as Jonathan and had ear surgery a couple of months ago. We are now very curious to find out if this is a genetic thing (Kim's cholesteatoma was congenital) or if Jonathan's was acquired somehow. Anyway, it was good to talk to her and to be able to have someone else who knows what Jonathan is going through. She has recovered well and her ear looks great, so that made us feel better!

This picture is of Emma Jeane, Kim and Anna. What beautiful gals!

A Change in Halloween Plans - NOT FOR THE FAINT OF HEART

Since removing Jonathan's bandage from his surgery, we have decided that a change in our Halloween plans is in order. We can no longer be mummies and have decided to go as Frankenstein! Well, ok, not really - but Jonathan very well could with his ear all stitched up like it is! It is a bit of a gruesome sight, which is why I made the picture so small, so you can just scroll right past it and not have to see it so close if you choose. :) It sort of looks like his ear came off and was sewn back on!


Oh and p.s. he is doing alright, but is still really exhausted. He is getting more and more feeling back in his ear and so it is a bit painful - thank goodness for drugs!

Wednesday, October 22, 2008

Mummies, Lorna Doones and Prosthetics

I am sure you are wondering what mummies, Lorna Doone cookies and prosthetics have to do with each other. Well, I will tell you. It all has to do with our day yesterday - and what a crazy day it was! Let me start at the beginning...

A few weeks ago Jonathan had an ear ache. He has had ear trouble in the past (infections, swimmers ear) so we went to Instacare and got it looked at. The doctor took a look at it and immediately said "oh wow - yep, it's definitely infected." So he got an antibiotic and we went home.

A week later, he was almost done with his antibiotic but his ear was still hurting a lot. So we decided there must be something up with his ear, and we went to see an ear nose and throat doctor.

The doctor said that Jonathan had what is called a cholesteatoma. As far as we understand it, it is a type of skin cyst that forms in the ear and starts to eat away at and erode the bones in your ear. If it gets really bad, it can actually eat its way up into the brain (not cool) and damage facial nerves and stuff.

So, we were kind of surprised but so glad to have found the cause to all of his ear troubles, and glad to find it before it got too bad and damaged his hearing much. They did a hearing test and he has a bit of hearing loss in that ear, but nothing too bad.

We were also very glad, now that we found out about this, that Jonathan had not found a new job yet and that we had not moved, because we may have been between jobs and without insurance when we discovered this - in a way it was a little blessing in disguise - or at least it made us realize that the Lord is looking out for us, even if things don't work out exactly as we want.

So, he went the next week and had a CT scan. The results of this were promising - the radiologist said that the bone had only eroded a little bit, nothing too major. He wasn't even sure if it WAS a cholesteatoma (although the doctor was pretty sure it was). The doctor wanted to do surgery to get rid of the cyst and take care of it before it got any worse.

Yesterday was his surgery. My parents were so kind to watch James for the entire day, which helped SO much. We had to be at LDS Hospital at 5:30 in the morning!! Talk about early (well at least for me). We woke up our boy and took him down to my parents' house at quarter to five, and then went to the hospital.

The surgery was scheduled to last about two hours (and was an outpatient surgery). They took him back around 7:15 and I had a grand old time waiting in the family waiting room. It was actually pretty nice, they had free snacks and juice and hot chocolate for the family members. I was so excited when I saw that they had Lorna Doones - after James was born and I had been in labor for about 18 hours, I was STARVING, and the first thing the nurse brought me to eat was Lorna Doones - they tasted SO darn good to me, I have loved them ever since! Lorna Doones and cranberry juice (which is what they brought me to drink) - man, that tasted so good. Sadly, they didn't taste as good as I remembered (I guess that's what a whole day of labor will do to you - ANYTHING would taste good after being that hungry and exhausted!)

So I waited, I ate breakfast in the cafeteria (not too bad, actually) and I sat in the waiting room and read all sorts of magazines, and a book I brought. There were lots of people in the waiting room with me, including a nice-looking older gentleman with a prosthetic arm who kept thinking they were calling his name when instead they were calling "Becky" - it was kind of humorous. When he realized his mistake he said, "I sometimes go by Becky..."

So two hours came and went. I figured it had taken them a little time to put him under and prep him for surgery, but I wasn't sure how long. Three hours came and went and I have to admit I was a little worried! They kept calling people's names, but not mine! My friend with the prosthetic arm thought they called Ralph when they called Dave and stood up again - he again realized his mistake and we exchanged smiles.

Finally, I think it was around 11:00, Jonathan's doctor came in and found me. He seemed a little grim (although, as far as I have seen, he usually seems this way) and started explaining how the surgery went. His number one goal was to get rid of the cyst and all the skin that had grown in his ear. Apparently it was a lot worse than he had originally thought - he said the skin had grown all around his hearing bones.

He went on, and he said "since the number one important task was to get rid of the skin so it won't grow back, I took out two of the hearing bones."

Ok, when he said this I was thinking "WHAT?!? You took OUT his hearing bones??" I couldn't believe it. I wanted to say, "So . . . . did you put them BACK? Can he hear??" I had a small moment of being pretty worried and of freaking out.

But then the doctor told me that he had put in two PROSTHETIC HEARING BONES instead. And I felt much better. But how crazy is that?? (Ha, I tricked you, you thought the post title referred to the man with the prosthetic arm!) My husband pretty much now has a prosthetic ear! We didn't see that one coming at all. He said that once he recovers for about six weeks, his hearing ought to be "pretty darn good" (his exact words). Whew, that was a relief, except for the fact that I still can't believe that he REMOVED my husband's hearing bones. Wow, how crazy. Thank goodness for modern medicine.

Some other crazy things - the facial nerve runs right through that area of the ear, I guess, so that was a big risk of the cholesteatoma and of the surgery. But the doctor said that it was fine (what a relief - I like seeing my husband smile! Plus he's got a really impressive frowny face that he makes - I cannot frown like that for the life of me, it is really a talent that he has got!) Also, there are some tasting nerves (don't know the actual name) and one of them (there are four, apparently) got kind of stretched out, so his tasting might be a little off for awhile. In fact, just as I am writing this, Jonathan was telling me how good his Jell-O tasted that I made him. I said "good, I'm glad! It is strawberry-banana flavored." He said, "oh really? I thought it was cherry..."

So, anyway, the doctor is hopeful that he got all of the skin, but we still need to keep an eye on it and get it checked again in about a year to make sure it is not growing back.

So as you can probably guess, this turned into kind of a major surgery and was a bit risky. We are incredibly grateful that we discovered this problem when we did, or else it would have gotten much worse. I don't even like to think about what could have happened! We are hoping and praying that his hearing will be alright and that the cyst will not grow back. We would really appreciate your prayers.

Anyway, I finally got to see Jonathan and he had an awesome bandage all around his head. We decided that maybe we ought to re-think our Halloween costumes and go as mummies. He was a bit loopy as the orderly pushed him down the hall in the gurney and was saying some funny things in a really low voice. He was SO sleepy and was pretty nauseated. The drive home was quite exciting, seeing as how he felt sick whenever he moved.

But, we are home, and he is feeling a lot better after some pain medications and a good night's sleep. As is Gibbons family tradition when someone is sick, I made him a comfy "place" on the couch and he got a lot of rest. My cute visiting teacher brought us dinner and we were so grateful. We are supposed to take his bandage off today (I have to admit I am nervous), and we are going to have a fun few days just relaxing, watching movies and playing the Wii.

Here is his fabulous mummy garb. We think this has great Halloween possibilities. Or, we could use the hospital gown that we ended up bringing home (I wonder if they'll charge us? Oh well, can't be too expensive, especially compared to prosthetic ears!) and go as hospital patients. Anyway, here is my man all bandaged up. I am so proud of him, he had a rough time but is doing great.


James was looking at his Daddy kind of strangely when he got home. My parents had him the entire day and brought him home around bedtime, along with some "twirl town toys" -another Gibbons family tradition for sickies: my Dad often goes to the grocery store and picks up what he, for some reason, calls a "twirl town toy" for the sickie. These "twirl town toys" were a metal detector (man, my Dad sure knows how to buy gifts for Jonathan) and a movie. Thanks, guys! You are so sweet.

Here is a picture of James looking at his Daddy and wondering what is going on -